Mia is a very active four-year-old with a diagnosis of Autism and seizures with developmental delays. Mia’s seizures consist of staring and tonic type seizures which can come on suddenly causing her to “flop” onto the floor, potentially causing injury. She is very mobile with walking, running, ascending/descending steps, and can talk to communicate her wants and needs. She receives ABA and speech therapies at home, PT and OT outside the home.

Lily is a 15 year-old girl with a very rare genetic disorder of “partial trisomy 9 with deletions and inverted additions”. Her grandmother, who helps care for her, reported that Lily’s exact medical conditions and expectations are unknown due to its rarity. Initial life expectancy was thought to be five years old with the inability to walk. Lily does walk independently although she needs supervision and guarding as she will swipe at items sitting on the surface, put everything in her mouth, or suddenly drop herself to the floor. She is non-verbal and dependent on all self-care needs.

Noah is a friendly 14-year-old with Kabuki Syndrome, causing low muscle tone, developmental delays, and heart issues. He has had five heart surgeries, including a transplant four years ago. Due to clubfoot and knee instability, he had right knee surgery 18 months ago and dislocated his left knee two months ago. He walks independently but tires easily.